‘She’s just everything.’ Family struggles as 4-year-old is diagnosed with rare illness

A Connecticut household is grappling with their 4-year-old’s uncommon prognosis that has left her in a medically induced coma for 65 days at Yale New Haven Well being Pediatric ICU.

Steve and Jill Rudolf’s seemingly wholesome granddaughter Talia Rudolf had been working fevers for 3 or 4 days.

“Whereas she was on the emergency room is when she had her first main seizure. It was very extreme seizure, in order that they instantly needed to put her on a ventilator,” mentioned Steve Rudolf.

Talia Rudolf has been within the hospital in a medically induced coma for the final two months.

“I’ve not had an excellent night time’s sleep in 65 days, and I am positive I wont till Talia is again house with us,” he mentioned.

After infinite exams and screenings, medical doctors identified her with febrile an infection associated epilepsy syndrome, or FIRES.

“She is one in every of solely I consider 78 folks in your complete world to be identified with this. The medical doctors have little or no info to work from in the way in which of treating it,” mentioned Steve Rudolf.

Talia’s mom has been dwelling on the hospital together with her daughter whereas her father goes backwards and forwards caring for their different daughter.

“It is actually fairly traumatic for not just for my children, however your complete household,” mentioned Steve Rudolf. “There’s medical doctors and associates from around the globe, engaged on Talia’s case.”

Because the household takes it day-to-day hoping for one of the best, they’re saddled with payments as they work to be taught extra concerning the uncommon prognosis.

“She’s simply all the pieces. You already know? She’s only a 4-year-old loving little little one. No child, no little one ought to should undergo like this,” mentioned Steve Rudolf.